Wednesday, August 13, 2008

Update on Lil' Mia

Excerpts from Mia's family blog:
We figured it was time for an update on our Precious Mia. "On Paper" Mia doesn't look too good. Her heart function hasn't improved since she returned to the hospital. From the time that we took her home, Mia's right side of her heart (the working side) is even more dilated than the deformed non-working left side. From what I gather, they are keeping Mia stable via an orchestra of medications, constantly consulting many professionals and tweaking meds depending on her latest problems and reactions. We have been impressed time and again at the skill and wisdom of the nurses and doctors caring for her. Mia has been on C-Pap (breathing assistance) but gets breaks.
Also, since her heart cannot function well enough to pump the necessary blood to her heart to digest food, they started feeding her today though an ND tube which bypasses the stomach. It is a small amount of food, but nonetheless it will get her digesting food. Apparently it is bad news if the stomach goes for a long period of time without digesting. This seems to be the same story with most of Mia's functions as a brand new body learning to live. I know they keep weening her from the breathing machine so her lungs can learn to breath and grow strong. One thing is certain. Mia is fighting with all that she has. The doctors tell us her ex rays and all info is pointing to bad news, but somehow Mia is getting decent amounts of oxygen to her extremities.
We love her more than we can express. We are grateful for all prayers and words of support. Without God's hand on our shoulders, and without all those around us acting as His angels we would surely have cracked by now.
A BIG thankyou to all that have donated and lended your support. The McDonald's are so grateful and amazed at everyone's generosity!

3 comments:

Brittany Osborn said...

I can't quit thinking about her. I am one reason the blog has so many hits. I come to check it out AT LEAST daily. :) I keep trying to spread the word. I really hope it helps.

Nancy Brown said...

Try and contact COTA for info on fundraising and getting help. They helped my sisters family so much. The fundraising they did was around 13k. It helped keep them going during his transplant.

cluffconstructionclan said...

I found your blog on a friends website and just want you to know that you are in our prayers and we are thinking of your very precious family. I am LDS and I would like to put your families name on the prayer roll we have in the Temples. I hope this is alright with you. Hang in there and give little baby Mia hugs and kisses from a family who's hearts she has touched in Safford Arizona