Monday, November 10, 2008

Posts from Mia's parents


Spaghetti
Mimi said that the tubes all over Mia look like spaghetti and they do. There are a lot of them, but I think our tolerance to the shock of that part has increased. We are just happy to see her doing well. It will be a bit of a roller coaster for the first year, but they say the first week is critical. At this point we are looking forward to a roller coaster of improvements. At least now each step back will be a few steps ahead of any previous setbacks. We are so elated that she can now actually improve! We just learned that the donor heart blood type is B, and Mia's we know is A. This won't pose a problem with a baby, and they confirmed that Mia hasn't built up any antibodies against A type blood pre-op.So she looks good. All the docs and nurses are really kind and excited for us, which makes it nice. We can now see the end of this leg of the journey.
Posted by John Boy at 1:12 PM

a GREAT Heart
Dr. Cohen said that Mia's hear is great. Not ok, and not good, but she got a great heart. The doctors have all said that it looks like a good stong heart. They had a relatively easy time prepping her as well because there was such little scar tissue from the hypbrid procedure that had been done. We are waiting in her room for her now. She should be another 20 minutes or so. They are sewing up her chest cavity, which isn't typical. Normally the chest is actually left open due to swelling. The space where they took out Mia's over sized heart has lots of extra room since her heart now is substantially smaller. We are so relieved and so excited!

24 comments:

Diana and James said...

I am soooo excited for you guys. Can't wait to see pictures of Mia without tubes someday.

LiNdS said...

We are so excited for the great news! Keep it coming!

Avery Tales said...

I just found your blog. Your family will be lifted up in my prayers. God Bless and Hold You.

Amy said...

WOW.
I am so incredibly happy for your family.

The Mursets said...

I am a friend of a friend. I have been following your story, and I am so glad to hear that your prayers have been answered. I hope she recovers quickly!

Jenn Mize said...

I am a friend of a friend and can't not even say how overjoyed I am for your family. Mia has blessed so many lives with her ability to endure these last 4 months. What an amazing child. I hope she continues to get better and with the Holidays around the corner what better gift can you ask for than a heart. Thank you for blessing my life by sharing the amazing story of Mia.

Jill said...

Oh I am so excited for you guys! I read your post everyday waiting for this post! I am just ecstatic *tears!!!! Can't wait for more updates throughout her recovery! Huge Hugs!

Ally Cox said...

What wonderful news! We will keep Mia in our prayers!

Deb said...

My prayers are with you all today. May God's peace be close with all of you.

momstheword said...

I have just "met" Mia. My prayers are with all of you. Her precious little heart just beats for Jesus, doesn't it?

The Butcher Family said...

Amazing! We are overjoyed for all of you and praying for Mia and her blessed and God-ordained new heart!

Heart hugs & many prayers~ Rebecca

rizzie said...

I have been following this for a couple of days, and that precious one is in my prayers. I am so happy to hear the great news. What a little pistol Mia is...a true fighter. I will continue to keep her in my thoughts and prayers.

Diana & CJ said...

Yes! So glad everything went well. She's a little fighter. So glad, so glad.

K & K said...

Yeah! Yippeeeeee! Wa Hooooo! MY buggest congrats to you and Miss Mia. I'll see you soon back on "the floor".

Here's the one we talked about...www.keyankeivan.blogspot.com

Just Call Me Sleep Deprived said...

I am so incredibly to hear this! I just found this blog this morning and couldn't stop thinking about little Mia all day, hearing she got a heart is so amazing! I cannot even imagine what you are feeling, Mia and your family will be in my prayers.

Beth said...

Congratulations to Mia and her family. I've been following this blog for a while now and was so excited to see the posts about her new heart! I will continue to say prayers for Mia, her family and all the doctors and nurses that are caring for her. I hope her recovery is without serious complications and that the time flies by until she can be home with her family.

Michael said...

Congratulations! We are so happy for all of you. All of our friends have been praying for sweet little baby MIA. We hope that she will continue to be strong and only get stronger. Our thoughts are with you. Love, Michael, JR and Linda McDonald

Jim Ed, Amanda and Addison said...

What an amazing thing to read! I didn't check in yesterday and had no idea that Mia's heart was on its way! God bless this sweet little angel; we will be praying for a smooth transition, especially this first week!

Tiffany said...

I found your blog by blog-hopping, and I just have to say that I am so happy for your family, and for little Mia. She must have a very special mission on this earth. I think all children do of course, but I am just very happy for you.

Everyday Mom Designs said...

I am so happy for all of you. I'm sure the road ahead will be a hard one, but at least now she has her heart... and a "great" one, at that.. I wish you all the best and you will certainly be in my thoughts.

Janine said...

I am praying for your family everyday! Mia is a true gift from God, and she is blessed.

Jr, Suzie, Cole, Cruz, and Lindsay Dean said...

I am sitting here with tears of joy for Mia and the entire family. What a great and joyous day! We will keep praying for the next hurdle to go well and will be praying for the donor family and that they find peace in what they have provided another beauty from God. What a blessing and prayer answered.
With Love, The Dean's

Suzanne said...

OMG- I can't believe she got a heart just in the time i saw you on Friday. WOW!!! Praise God.

Kim said...

I am so thankful for ya'll! God is so amazing at what he can do & heal! Hope for the best for Mia's recovery & family!!
God Bless