Monday, November 10, 2008
Mimi said that the tubes all over Mia look like spaghetti and they do. There are a lot of them, but I think our tolerance to the shock of that part has increased. We are just happy to see her doing well. It will be a bit of a roller coaster for the first year, but they say the first week is critical. At this point we are looking forward to a roller coaster of improvements. At least now each step back will be a few steps ahead of any previous setbacks. We are so elated that she can now actually improve! We just learned that the donor heart blood type is B, and Mia's we know is A. This won't pose a problem with a baby, and they confirmed that Mia hasn't built up any antibodies against A type blood pre-op.So she looks good. All the docs and nurses are really kind and excited for us, which makes it nice. We can now see the end of this leg of the journey.
Posted by John Boy at 1:12 PM
a GREAT Heart
Dr. Cohen said that Mia's hear is great. Not ok, and not good, but she got a great heart. The doctors have all said that it looks like a good stong heart. They had a relatively easy time prepping her as well because there was such little scar tissue from the hypbrid procedure that had been done. We are waiting in her room for her now. She should be another 20 minutes or so. They are sewing up her chest cavity, which isn't typical. Normally the chest is actually left open due to swelling. The space where they took out Mia's over sized heart has lots of extra room since her heart now is substantially smaller. We are so relieved and so excited!
Posted by help baby mia at 1:46 PM